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07 November 2005 @ 07:26 pm
My Diagnosis...  
...pending the results of the MRI/MRA scheduled for November 16th.

Sporadic Hemiplegic Migraines with Neurologic Deficit

Which, so I understand, is a migraine with the added fun of expressive aphasia (inability to speak), hemiplegia (paralysis on one side of the body}, impaired consciousness, the symptoms of meningitis, and other symptoms mimicking stroke.

I have to have the MRI/MRA (to rule out aneurysm or tumor). I have to have some blood tests. I have to get a Medic Alert Bracelet/ID.

I have to start taking some daily supplements, including a baby aspirin a day to reduce the risk of stroke because this particular migraine has an increased risk of stroke.

I can take Imitrex or other such drugs for the pain/other symptoms.

I can take seroquel as a rescue medication (will knock me out) if the pain gets above a 6 (that's my scale...my mother says that my 6 level pain is a "normal person's" 8 level pain.).

It would be easier to tell you what I can eat rather than list the vast multitude of things I am no longer allowed to eat. Let's just say I will be a) eating very boring foods and b) losing a lot of weight.

Also, I still have weakness and numbness in my right arm and leg, which the doctor says may or may not resolve itself over time.


There you have it.

I'm not sure what else to say other than...fuck.

I'm going to order my Medic Alert ID now. They have dog tag versions now too. I wonder which one I will end up choosing; bracelet or dog tags?


My State of Mind: worrieda bit...concerned
What the Voices in My Head Hear: Antiques Roadshow
replevin for a cow.: svu | alex liv and hospitalquasiradiant on November 8th, 2005 01:13 am (UTC)
i'm thinking of you very, very hard. i'm curious: why the food repetoire reduction?
seftiri: Benson Cute Smileseftiri on November 8th, 2005 02:15 pm (UTC)
thanks sweetie

as far as i've been told, there are a number of substances in the now no-no foods that are known triggers, such as sulfites, which are found in dried fruit, red wines, and some aged or marinated meats, and tyramine, which is found in some meats and fruits and most cheeses...

plus a lot of these no-no foods have some sort of artificial aspect or brine aspect to them (no more olives! eeeeek!) it seems like if it can be aged, like cheese, wine, sourdough bread or meat; or pickled, like pickles, olives; dried, like fruit; or is in any way caffeinated, like chocolate, coffee, or tea, well....then I can't have it.

(no subject) - quasiradiant on November 8th, 2005 04:16 pm (UTC) (Expand)
(no subject) - seftiri on November 8th, 2005 04:22 pm (UTC) (Expand)
(no subject) - quasiradiant on November 8th, 2005 05:17 pm (UTC) (Expand)
Rebecca: blue like thattheniwokesoftly on November 8th, 2005 01:42 am (UTC)
Dude, everyone on my flist is sick. Stop worrying me!

My mom has diabetes and she wears her bracelets out. I like the dog tag idea.
seftiri: All Smilesseftiri on November 8th, 2005 02:18 pm (UTC)
trying not to worry you!

and someone said that the only drawback to the dog tags is that if i do lose consciousness and the EMTs come, that someone has to go pawing around for the dogtag...not so sure i want someone pawing around in my chest area...

initial research, however, shows that MedicAlert offers both lime green and goliath purple options for their emblems. ;)

i was just as surprised as you are. :)
Danielle: Charmed - dani_ellie on November 8th, 2005 01:49 am (UTC)
*snuggles oh so tight*

Do you have my numbers and such? Because I want you to use them. :P

You'll be all right, hon. I promise. And I don't go back on my promises. So there. *hmph*
seftiri: Casey Hugseftiri on November 8th, 2005 02:20 pm (UTC)
Yep, I have 'em. And I will use 'em, I promise. :)

*snuggles tight*

Thanks hon. And thanks for keeping me company last night. :)
Shut up and smile: Oraclemorningafter2 on November 8th, 2005 02:53 am (UTC)
Oh, goody, that sounds so fun. >_< You know, I'll think about you whenever I feel like complaining about the flu, and suck it up. I do not envy your health.

I really should wear a medic alert bracelet. I'm, like, deathly allergic to penicillin. But for some reason, I don't. Never really thought about it.

I hope everything turns out okay. I'm sure it will.
seftiri: DN2seftiri on November 8th, 2005 02:22 pm (UTC)
Thanks hon!

And yes, you should wear one! I'm surprised your doctor has never suggested it. But then, the scenarios where you would be brought to the hospital unconscious and require a penicillin injection are probably few and far between.

But still!
(no subject) - morningafter2 on November 8th, 2005 02:28 pm (UTC) (Expand)
Backwards Girl: Lame Morons - Anyafight_back83 on November 8th, 2005 03:10 am (UTC)
I'm so sorry that it turned out to be such a complicated and scabby diangosis. Lots of prayers for you!
seftiri: Dreamseftiri on November 8th, 2005 02:23 pm (UTC)
Thanks, babe. I can use them. :)
ralstralst on November 8th, 2005 03:16 am (UTC)
Bloody hell!

Is it something that, now they know what it is, they can eventually cure. Or is it just a matter of controlling the symptoms?

Whichever, I feel for you hon.
seftiri: seven of nineseftiri on November 8th, 2005 02:24 pm (UTC)
Nope, no cure. Just a lifetime of symptom control.

And thanks, Rach. :)
(no subject) - quasiradiant on November 8th, 2005 04:18 pm (UTC) (Expand)
(no subject) - seftiri on November 8th, 2005 04:22 pm (UTC) (Expand)
Tiffany: teh casey not brokenpiekid on November 8th, 2005 03:30 am (UTC)
I'm so sorry babe!

I'm here if you need me.

::much hugs::
seftiri: NovakJusticeseftiri on November 8th, 2005 02:26 pm (UTC)
Thanks hon! And I know.

::much hugs back::

Meg: WTFmegandjim on November 8th, 2005 03:39 am (UTC)
dude.... fuck!
seftiri: SmirkYeahRightseftiri on November 8th, 2005 02:27 pm (UTC)
Yeah...that's kinda what I said. ;)

dragynfliesdragynflies on November 8th, 2005 03:47 am (UTC)
Aww, Honey. *cuddles you* I was really hoping you were just having a really bad string of migraines. This is teh suck. :(
seftiri: Lime Satseftiri on November 8th, 2005 02:28 pm (UTC)
*cuddles back*


And yeah, this is teh suck. But somehow, I'll get through this. :)
E: tulipswarrior_cat on November 8th, 2005 07:40 am (UTC)
Goodness! That's awful! =(

*big massive hugs*
*wishes you much feel-good vibes*
seftiri: Cutie Bareseftiri on November 8th, 2005 02:30 pm (UTC)
Yeah...but I'll live. :)

*hugs back*

And thanks for the feel-good vibes. I can use them. :)
(no subject) - warrior_cat on November 9th, 2005 01:11 am (UTC) (Expand)
shay: makeumineshaych_03 on November 8th, 2005 08:10 am (UTC)
go with dog tags. you can get them in anodized green aluminum, i think ;) if not, you can always get the rubber edge guards in green :D

seriously though...

*hugs* you have my number too. please feel free to use it when/if you need to ... for whatever reason :)

seftiri: Casey Kicks Assseftiri on November 8th, 2005 02:32 pm (UTC)
Actually, MedicAlert offers the bracelet in a lime green or a goliath purple option. I might go that route. ;)

And thanks...I will.

And yeah, there does seem to be a problem with LJ's internal clock. Mine on my computer is right, though.

How odd...
(no subject) - shaych_03 on November 8th, 2005 03:07 pm (UTC) (Expand)
Baby Sis: B/K comfortbaby_sis on November 8th, 2005 08:10 am (UTC)
You're strong (dude, your tolerance for pain is high!), and you'll get through this. As always, you're in my prayers :)
seftiri: Diane @ Habitat4Humanityseftiri on November 8th, 2005 02:33 pm (UTC)
Thanks, hon! I could use all the prayers I can get. :)
rave_review on November 8th, 2005 10:09 pm (UTC)
Oh, sweetie! The food control really blows, but LIME med alert TAGS? Nice! My asthma bracelet is really ugly, so I'll have to look into that.
I'll be thinkin' about you!
seftiri: All Smilesseftiri on November 10th, 2005 08:23 pm (UTC)
Thanks for the good thoughts.

And yeah, the official MedicAlert website has a few fun items. Check 'em out!

(Deleted comment)
seftiri: Casey Hugseftiri on November 14th, 2005 02:48 pm (UTC)
Thanks for your good wishes and don't worry about "a late response". :P

My MRI/MRA is scheduled for this Wednesday, so we'll know more then, I hope.

But right now, I'm practically headpain free. Which I enjoy greatly! :D